Stay Involved: National Academies Study on Alzheimer’s and its Related Dementias

Register to virtually attend the study’s next two workshops on July 7 and 8

The National Academies of Sciences, Engineering, and Medicine (NASEM) are holding two virtual workshops related to its ongoing Decadal Survey on Alzheimer’s and its Related Dementias on July 7 and 8, 2020. This study seeks to draw on expertise from the scientific community and other stakeholders to analyze the role that behavioral and social research plays in the continued effort to reduce the burden of Alzheimer’s disease and its related dementias (AD/ADRD). Each day of the workshop will cover different topics relevant to the committee’s work on the survey.

In these two workshops, the committee will review multiple research areas of relevance to psychological scientists and other behavioral scientists, including methods used to study ADRD and these diseases’ effects on individuals, families, and medical facilities. The committee will also review cognitive factors involved in AD/ADRD as well as the causes and consequences of health disparities stemming from these diseases.

Each meeting day will cover different topics related to the study. The first meeting on July 7 will cover two main topics: (1) End of Life, Hospice, and Palliative Care, and (2) Making Health Systems Responsive to Dementia. Decision-making will be a point of discussion for both main topics as it relates to end of life decision making or decisions surrounding housing of those with dementia.

The second meeting on July 8 will cover (1) Elder Law and Preventing Fraud and Abuse of Individuals with Dementia, as well as (2) Living Well with Dementia: Disease Trajectory, Retaining Cognitive Capacities, Maximizing Quality of Life, and Measurement Issues.

Each meeting day will feature a chance for public comment.

As previously noted in APS coverage on the topic, the Alzheimer’s disease and Alzheimer’s disease-related dementias decadal survey is only the second decadal survey in the area of behavioral science that the Academies have conducted. This shows the significance of this topic and the interest from the research community in this area.

APS members are well represented among the committee members. To learn more about the decadal study, visit the information page here.

Registration and the agenda for the two workshops can be found below:

July 7 – Workshop on Nursing Home, Hospice, and Palliative Care for Individuals with Later-Stage Dementia: Making Health Systems More Responsive to Dementia

July 8 – Workshop on Quality of Life for Individuals with Dementia: Preventing Elder Abuse and Fostering Living Well After a Dementia Diagnosis


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