Caregivers' Experience Accessing Services for Their Child with Inborn Errors of Metabolism

Poster Session VI

Keyword: Other

Abstract: Caregivers of children with rare genetic conditions experience significant stressors from managing their child's medical care and well-being. Qualitative results (n=21) reveal that when publicly funded services are approved, they can have a positive impact on caregivers’ stress and their ability to effectively care for the care recipient and themselves.

• Alexa Raxenberg (Presenting Author)
• Kamryn Wilson (Author)
• Marlena Fisher (Author)
• Patricia Cooper (Author)
• Laura Koehly (Author)